SparkHope is dedicated to helping people with rare diseases and their loved ones create a happy, meaningful, and hopeful life.  Our goal is to SparkHope. You do it, we help you make it happen. There are an estimated  25-30 million Americans with rare diseases and an estimated 7 thousand rare diseases.. Often, someone with a rare disease has few, if any, people near them with their disease. This makes it challenging for people with a rare disease and their loved ones to connect with others who share their experiences. SparkHope helps people with rare disease cultivate and find their community and develop resilient mental health. How do we help? Are you representing a patient organization or are you a patient or their friend or family? 

 Our mission:

Join us in making alone together and turning hope into action

There is HOPE

There are FRIENDS

What is a rare disease?

Upcoming events

Stay tuned for upcoming events!


Tell us about your event. Maybe we can help spread the word.

Sponsor our hope building work here. This donation is tax deductible.

A rare disease is defined, in the US, as a disease that affects 200,000 people or less, For many, if not most, rare diseases there is no cure or treatment. When faced with that, it is easy for patients and their loved ones to lose hope. Let's find fun, friends, and hope together. We'd be honored to help you SparkHope.

Is to spark the hope of the rare disease community through fellowship building events and developing resilient mental health.

There is FUN

connecting People  affected by rare diseases