A rare disease is defined, in the US, as a disease that affects 200,000 people or less, For many, if not most, rare diseases there is no cure or treatment. When faced with that, it is easy for patients and their loved ones to lose hope. We'd be honored to help you SpakHope.
Join us in making alone together and turning hope into action
There are FRIENDS
There is FUN
wHAT IS a rare disease?
Sponsor our hope building work here. This donation is not tax deductible, if you'd rather make a tax deductible donation, email Jean.
Is to spark the hope of the rare disease community through fellowship building events and developing resilient mental health.
FA Adventure Day for people with Friedreich's Ataxia (FA, one of the 7,000 rare diseases) and their loved ones.
Monday August 12, 2019
There is HOPE
Until there's a cure, we will live with hope
SparkHope is dedicated to helping people with rare diseases and their loved ones create a happy, meaningful, and hopeful life. Our goal is to SparkHope. You do it, we help you make it happen. There are 10 million Americans with rare diseases and an estimated 7 thousand rare diseases.. Often, someone with a rare disease has few, if any, people near them with their disease. This makes it challenging for people with a rare disease and their loved ones to connect with others who share their experiences. SparkHope helps people with rare disease cultivate and find their community and develop resilient mental health.